Group of people sitting together on park bench

Why This Community Exists

When you're 25 and you get an ostomy, the world suddenly feels like it's designed for different people. Most resources are created for older adults, support groups often don't relate to your concerns about dating or career building, and you might feel like the only young person dealing with this.

That's where the Young Ostomate Collective comes in. We saw a gap: a whole generation of young adults who needed resources, support, and community that actually spoke to their lives and experiences.

This community was born from the recognition that young ostomates face unique challenges:

  • Navigating dating and intimacy in your twenties and thirties
  • Building careers while managing a chronic condition
  • Making decisions about disclosure in professional and social settings
  • Maintaining body confidence during formative years
  • Travelling and exploring the world with an ostomy
  • Building independence while learning ostomy management
  • Dealing with insurance and healthcare systems as young adults

"I believe that having an ostomy doesn't limit what you can achieve. It just means you might need different strategies and a community that understands your journey."

My Story

The Young Ostomate Collective started when I realized I was asking questions and facing challenges that weren't being addressed in existing ostomy support spaces. As a young adult with an ostomy, I found very few resources that spoke to my specific needs and life stage.

I created this platform to build the kind of community and support system I wished I'd had from the beginning. Through articles, resources, and creating space for connection, I'm working to help other young adults navigate life with an ostomy.

What Makes This Different

While I deeply respect the broader ostomy community, I recognized that young adults have distinct needs:

  • Peer Perspective: Content from someone who's also figuring out their career and navigating young adult life
  • Modern Challenges: Addressing dating apps, social media, and contemporary workplace issues
  • Active Lifestyle Focus: Resources covering everything from music festivals to backpacking trips
  • Real Talk: Discussing topics that might feel awkward in mixed-age groups
  • Future-Oriented: Focusing on building the life you want, not just managing medical needs

My Mission

To build a supportive community where young adults with ostomies can connect, share experiences, and access resources tailored to their unique needs and life stage.

Connect & Support

Creating space for meaningful connections between young ostomates through community building and peer support.

Educate & Empower

Sharing practical resources, guides, and information specifically designed for the challenges and opportunities young adults face.

Inspire & Advocate

Sharing stories, advocating for young ostomate needs, and demonstrating that having an ostomy doesn't limit your potential.

Our Values

Authenticity & Honesty

We believe in real talk, not sugar-coating. Our community thrives on honest experiences, genuine support, and authentic connections. We share both the challenges and the victories.

Confidentiality & Respect

What's shared in our community stays in our community. We maintain strict confidentiality and create a safe space where members can be vulnerable and open without judgment.

Inclusivity & Diversity

We welcome all young adults with ostomies regardless of type, reason, background, or identity. Our strength comes from our diverse experiences and perspectives.

Empowerment & Growth

We focus on empowering each other to live fully and pursue our goals. Having an ostomy is just one part of who we are, not the defining characteristic of our lives.

About the Founder

I'm Savannah, and I created the Young Ostomate Collective after getting my ileostomy at 28. Like many young adults, I struggled to find resources and community that truly spoke to my experience navigating career, relationships, and everyday life with an ostomy.

I'm building this platform to create the support system I wish I'd had from the beginning. As this community grows, I'm excited to connect with other young ostomates and create space for us to support each other through the unique challenges we face.

Ready to Join Our Community?

Whether you're newly diagnosed, years into your ostomy journey, or somewhere in between, you have a place here. Connect with others who understand your experience and build the support network you deserve.

Join Our Community